Wednesday, June 13, 2012

Miss Ivanna Pants & Stuff

Well, first, let me apologize for the lack of posts. It must be so boring following this blog. I have a hard time etching out time to post - as it takes a bit of time to log in, post pictures blah blah blah ...

You understand ...

And as I type this I have a little Justus running to me upset about something. Lol. So goes it.

Ok. Justus is cuddling, and settled. So let's move on.

Life has been insanely busy. I do sometimes wonder what in the world are we so busy with? However, it isn't just one particular 'thing' we are trying to accomplish, but a whole lot of stuff mixed in with loving on these kiddos and just simply living life.

I won't bore you with all of that. 

I have found some pictures I took of Ivanna a month or so ago. They are her with a wrap around her legs. On the advice of her physical therapist, we have started to wrap her legs together every once in awhile to help her overcome 'frog legs', where she allows her legs be wide spread apart. The problem with froggy legs is that it doesn't train your muscles correctly - thus it becomes just easier to have your legs wide open - because that is how your body has adjusted. This is a common occurrence with children having Down syndrome, and it is due to low muscle tone. 

Ivanna is NOT a big fan of having her legs together. It is not hurting her in anyway - just out of her comfort zone, as she has gone years in developing the wrong muscles, so it's a habit that is hard to break.

I will mention that Ivanna is something of a Houdini when it comes to getting out of anything. She soon realized how to undo this wrap, and so we have started to do other things to help train her leg muscles. We have use the 'hip helper' pants, which are great, except Ivanna has learned if she just hikes them up, she can once again be unrestrained. Hip hugger pants are actually shorts with the legs sewn together.  Thus creating the same effect as the wrap. 

We are still playing around with different techniques. I am learning a lot from our wonderful physical therapist, of whom has really become a friend. She sees all three children in our home - and we love her. If your local and would like her name, just email me. Makes life a bit easier in managing appointments when three of those appointments can take place in the comfort of your own home.

Ivanna is going in for surgery on June 20th to have several teeth extracted. It requires surgery with anesthesia and will be done in the local hospital. The reason for the surgery is due to her adult teeth coming in behind her baby teeth - and the baby teeth refuse to loosen up. *sigh* Is this common with Ds?? So ... they must come out so her adult teeth can find their way to the appropriate place. I covet your prayers for her, as I always get a bit nervous at having to use an anesthetic. 

I am sure the outcome will be just fine.

*and yes, I realize Ivanna is wearing green dinosaur jammies. Sometimes you just grab whatever is closer - even if it is brothers pj's. (we're so stylish like that) Lol. *

Ok. Gotta run. I hear a crazy toddler making a racket somewhere in this house. . .  

Thanks for checking in. I hope you have a blessed day. 

Remember to hug your kids today, wether they are thirteen going on twenty or still a wee babe. 


Anonymous said...

Ha! I didn't even notice the pajamas, that just shows how little I care about how my kids dress.Sometimes my 16 year old will redress one of the "littles" because she says they look ridiculus.Have you thought about taking a pair of tights or leggings and sewing them together right to the knees. If they have feet she won't be able to pull them up. Your family is sweet and I enjoy your blog.

The Potvin Crew said...

Praying that all goes well for Ivanna. Hugs, Grace


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